10/29/07

Maybe I am just insane.

I'm in Arizona. I am visiting a friend. In the last hour or so my TS has gotten really bad. I am not sure why. It's annoying. I am sitting in a computer lab at the school he attends. People are probably looking at me. I have my headphones on. I am ticcing vocally - extra loud. When I wear headphones that happens because I need to hear it. If I don't hear it, it doesn't count. Sometimes just feeling the vibration in my throat is enough. It's funny. If I could trade in all my motor tics for just vocal tics I would totally do it. I like my vocal tics for the most part. I mean I hate all of it but sometimes the vocals comfort me. It's almost like they're my buddies. Wow, that is nuts.
I am not denying that I might be nuts. Whenever I think I may be crazy I shoot that idea down because I know it's just the TS that makes me seem crazy. But then I think that maybe I am crazy because the TS has made me into someone that I wouldn't otherwise be. A crazy person. I have become this way because of my dealing with TS. I am not like other people. I have to go through different channels to function in the same world they do.
You ever notice in movies that take place in insane asylums, the nuts are always ticcing? People tend to associate ticcing with being crazy. Now, we can chalk that up to ignorance but there may be some validity to it. Maybe all of us touretters really are fucking nuts. That's why we're penned up in nut houses. Ticcing ourselves to death.

10/25/07

"You'd give everything you had if you could be over there."

Ok. I'm in Cortez, CO. I am sitting in my car. I set up my tent and am going to sleep soon. I have been staying off the interstates. The trip is so much more enjoyable that way. I was in a shitty mood all day today. As soon as I got on the road this morning I called my girlfriend. She started crying and yelling at me for who knows what. I hung up on her. So, the whole day I was just bummed out. And I was driving through some beautiful examples of our country's incredible landscape. It was hard to enjoy it because of my lousy mood.
I barely notice my tics anymore. I guess because I am spending so much time by myself I am not thinking about it. I am not worried about who hears me or sees me. It's sort of like picking your nose. When no one is around you just get right in there.
But today I noticed I was ticcing it up. I had a regular symphony of vocal tics going. As loud as I fucking wanted. No one but the engine could hear me. I am sure it was because I was stressed out. Either I was ticcing more or was just more aware of them. It doesn't really matter.
I think I have been ticcing less lately, though. This trip is good for me. I have no job, no plans, no stress for the most part. I'm just taking it easy. I am headed to the Grand Canyon in a couple of days. I have never been. Tomorrow I am going to cruise through the four corners. Never been there, either. Big deal.
I have been to a lot of places. I am fairly well traveled by most people's standards. I've been to almost all 50 states. 46 down, 4 to go. I have been to a whole bunch of other countries. I have traveled to sketchy places with almost no money and no plans. Sometimes I fly to foreign lands on a whim. Why not? I wonder why that is. I mean I do love to travel. But it's more than that. I can never settle. I never want to stay put. It's sort of a bigger picture of my everyday actions. I can't sit still. Always twitching. Never comfortable. I guess that's why I live the way I do. I never live in the same place for more than a few years. I am always migrating. I am always picking up and going.
Maybe if I didn't have TS I would be more apt to stay put and lead a "normal" life. Maybe I am running from myself. Maybe I feel like if I stay in one place and live like everyone else it would be more obvious to them how different I really am. I would stand out more. No one can see how strange I am under the guise of an outlandish lifestyle. I am the pick up and go traveler. I am the guy who goes all the places and does all the things everyone says they wish they could.
But I wish I could be the guy who doesn't have to keep moving. I want to stay put. I want to feel like I have something to lose. I want to envy people like me.

10/20/07

"Hope can always go up. Tears can only come down."

I am in Denver. I used to live in Colorado. I miss it here. I have seen many old friends. The long drive yesterday was a good one. I realized something.
Ever since I started this blog and started talking about my TS online I am getting more comfortable with it. I am not constantly trying to hide it. I mean I am but not as much I used to. I think it is a step in a very important direction for me. I have been hiding from my TS for so long. And I have been hiding it from the world.
I am not saying I want to tell everyone I know that I have TS. But I am thinking less about who is noticing and how and when I should hide my tics. It still sucks. I mean I am still ticcing, regardless of how comfy I am. I am just fighting the urges less.
I wonder if in the future I will not hide it at all. I wonder if I will just let it go. That may be what my life will be like one day. I can't imagine it. And it doesn't necessarily sound so great. Having people stare and feel uncomfortable around you is not always a welcoming situation.
But who knows. That just may be the way we all end up, eventually. Apathetically going about our days.

10/15/07

45 states down, 5 to go

I am in Texas. The TS is pretty bad. I still have a headache. I was going to stop near Houston and camp. But it is raining terribly here. I am going to push on to Austin. I have some friends there. I have been doing a lot of thinking about my life during this trip. Many hours alone in a car will do that to you. I always wanted to do something important with my life. I always assumed I would when I was younger. As I got older I stopped thinking that way. And then I thought about writing about TS. Maybe I can help other people. I can help others deal with their TS by sharing the knowledge I have gained from fighting mine.
But I don't want to be known as a touretter who made something of himself. And I feel like that is always how it will be. Can't I just be me? Ha. yes, I guess I can. And me has TS. I am tourettes. Hear me roar, you normal bastards.
Ok, back to the car. I have some driving to do.

10/14/07

On my own

I am sitting in my car in New Orleans. I just finished walking around Bourbon street. I have been driving all day. My TS is pretty bad. I have a headache. I am tired and irritated. I have this vocal tic I do with my saliva in the back of my throat. I am doing it like crazy, right now. I can't stop. It gave me this headache. It's enough already! Can't I ever get a fuckin break? I feel lonely and annoyed. Sometimes this life is hard enough. I hate TS. No one to turn to.

10/11/07

"Time to move on. Time to get going. What lies ahead, I have no way of knowng."

I am about to set out on a drive across the country. I am in Florida right now. I will be visiting a friend in Orlando for a couple of days and then I am headed west. I am moving to California. I am moving in with my girlfriend. Our long distance relationship has evolved. Everything I own is in my car. I will be spending a lot of time by myself for the next few days. And I am totally looking forward to it.
I was thinking about this today. It's the time we spend by ourselves that let's us truly get to know what makes our brains work. And as a touretter, the way my brain works is a tricky subject.
When on my own, I am able to enjoy my TS in a way I usually don't. When I am lost in my own thoughts with no one to bother me I find my tics amusing. Normally the echolalia drives me crazy. But when I step outside myself I can truly enjoy it. I find it interesting to observe myself repeating things and mimicking gestures. It's funny to see which sentences stand out. Why are some more appealing to my tourettes than others? What makes the demon want me to repeat certain things I hear or see or even think? I repeat shit I think to myself. Over and over. Sometimes my thoughts strike me as something I need to repeat. The point is it can be funny enough to make me laugh aloud.
And it can be sad. Sad because I am the only one in on the joke. No one else gets it. No one else knows why am laughing and trying to explain it would be futile. And sad because the joke is not funny at all. The humor I find in it comes from my defenses protecting me from how scary TS really is. But we all need to build up our walls somehow. Otherwise it would get the better of us. And fuck that. No syndrome is going to take me alive.
So, I am looking forward to this long drive by myself. I will be driving and camping all over this USA and hopefully meeting some interesting characters along the way. Or not.
Maybe I'll be the interesting character.

10/8/07

Good for you. Good for me.

So, I just spent two weeks with my girlfriend. Once, when I was thwacking away at the keyboard of my computer, she said: "why do you do that?" She wanted to know why I make those faces when I am in front of my computer. And then she proceeded to attempt the very faces in question. She did a pretty decent job, actually. What she doesn't realize is that it's not that I make these faces when I am in front of my computer. It's just that I forget she might be watching me when I am all wrapped up in whatever it is I am doing in front of the screen. And when I think no one is watching...
Once, when we were in the back seat of my parents' car I was staring out the window lost in my own thoughts in the midst of a vocal tic parade, she put her hand on my arm and said: "stop it." She looked at me with absolute concern and compassion and uttered those two words. I smiled and looked away.
People have asked me how it is she does not know I have TS. How can my girlfriend not know? Of course, she knows. She knows I make funny faces and funny noises. She knows I avoid telling her why. She doesn't know it is tourettes that makes me do it. And she doesn't know how much more often I tic than she gets to witness. It's not that big of a deal. It's not like I am hiding in dark alleys to tic. There is plenty more to my life than the tics. She knows lots about me, already. Must I bare all to her? Must every relationship be based on full disclosure? Is there no entry level information sharing program we can partake in? Isn't that what relationships are all about? We will get to know each other in due time. I am not going to force it because some people in the TS community believe it is our duty to inform the world of our condition.
Maybe it gives their lives purpose. Good for them. My purpose is to live my life as best I can without going crazy or hurting anyone else in the process. And if I help some people understand TS better than good for me.